A few weeks before we came home from NICU, the nurses let us take Samuel out in the NICU pram for a walk. We didn’t go very far as we were quite nervous but we felt very proud pushing our beautiful baby around the neighbourhood. It was the first time we’d been properly alone with Samuel and it was wonderful.
The NICU 'chav pram' (apologies to any Burberry fans). His little friend is Grannie Bear (named after Grannie who knitted her).
Samuel's cardigan and bobble hat were knitted by Grannie.
I’ve been reading more of the #definenormal blog posts which are part of the Define Normal blog hop challenge at Just Bring The Chocolate. I can relate to all of them in some way and to me, they sound all very, well, normal.
And that’s the thing. I’m so used to our little world, our little bubble, that sometimes I struggle to step back and realise what isn’t perhaps the mainstream normal.
It might be because Samuel is our only child. This is our only experience of being parents & having children. This is all we know.
Samuel has always had seizures. Medicines have always been a crucial part of Samuel’s care.
Samuel has never given us eye contact. He has never smiled. Never laughed. The only time we see him smile is when he is having a seizure and boy he would have one fantastic cheeky smile. But we’ve never had that so it doesn’t feel strange. But it does make me feel sad.
We get asked if Samuel likes this or likes that. We don’t know. How do you tell if a six week baby likes something? Sam might be 17 months old but is only really like a little baby.
But that is how he has always been. This is our normal.