I’ve been away for a bit, sorry. Not away away, just away from blogging. Everything has been ok, ish, but as Samuel’s seizures have been all over the place which has now led to an increase in both his Clobazam and Vigabatrin doses, plus starting to plan fundraising activities while also trying to reclaim my craft mojo, didn’t feel like there was much room left in my brain for the blog!
Coming up, we are hoping to be approved for funding to get Samuel a special standing frame. I’m preparing to go into battle with the wheelchair unit to get Samuel a better buggy. We will also be trialing a sleep system next as Samuel’s position overnight is quite poor and I’m going to be trained this week on how to use suction for us to use at home, just for when Samuel has a heavy phlegmy cough and cold.
Oh and by the way, ‘The Bear’? That would be Samuel. He’s our real-life bear.